NC Hemophilia Casino Night a Fun Success!

The Hearts for Hemophilia Casino Night that was held on Saturday January 21 was a big success! 2012 marked the 5th year of the event. The fundraiser was held in Durham at the American Tobacco Campus. To view photos from the event, please click here.

Kawasaki Disease Awareness Day

Today is Kawasaki Disease Awareness Day. Here is a news story about how one woman is working to raise awareness about the disease. For more information about Kawasaki Disease, please click here.

Hearts for Hemophilia Gala - Texas Central Hemophilia Associate

Mark your calendars for March 3. The Texas Central Hemophilia Association will hold a Hearts for Hemophilia Gala at the Westin Dallas Fort Worth. The fundraiser will begin at 6 pm. For more information about the event, please click here.

2012 Hemophilia Walks

The National Hemophilia Foundation is kicking off the 2012 Hemophilia Walk season with a new Web site! This year there will be 24 walk locations across the United States. Not all the locations have set the time and date for the walks but you can still visit the new site by clicking here.

Educational Meeting on Gaucher Disease

The National Gaucher Foundation will hold an informational meeting on Gaucher Disease in Ft. Lauderdale, FL on February 26. The event will take place at the Double Tree from 12-3 in the afternoon. Lunch will be served. The session will offer attendees time to have questions answered about the treatment of Gaucher Disease. For more information, please click here.

Check out this Hemophilia Video

Here is a really great video for young adults and adults on hemophilia and what happens during the coagulation process. If you know of any other good educational videos on bleeding disorders or autoimmune disorders please let us know!

2012 NHF Washington Days

The National Hemophilia Foundation's 2012 Washington Days are fast approaching. The dates have been set for March 7-9. There will be plenty of time to meet with lawmakers and staff as well as time to network with other families affected by bleeding disorders. For more information or to register please click here.

Upcoming Meetings for the Greater Florida Chapter of the Myasthenia Gravis Foundation of America

If you live in the Florida Area and are looking for a Myasthenia Gravis support group meeting, then there are some meetings coming up in the next several weeks.

Boynton Beach Support Group - January 21 at 1 pm
Daytona Beach Support Group - January 28 at 10 am
St. Petersburg Support Group - February 2 at 7 pm
Jacksonville Support Group - February 4 at 1 pm

There are a number of other support groups in the Florida area that have upcoming meetings but do not list dates and times. For all Greater Florida support groups contact information and meeting information, please click here.

The Hemophilia of North Carolina 5th annual Casino Night "Hearts for Hemophilia" is quickly approaching. The event will take place on January 21 at the American Tobacco Campus in Durham and will start at 6:30. For more information please click here.

Central Texas Hemophilia Association - Balancing Sports and Exercise

The Central Texas Hemophilia Association will host an evening talk on Balancing Sports and Exercise. The presentation will be in Spanish and will take place at Pappasitto’s Cantina in Arlington, TX. For more information about the event, please click here.