Victory Junction Gang Camp

Victory Junction Gang Camp in Randleman, NC will be hosting several camps for children living with bleeding disorders, their siblings and a family camp. There are camps in June, July and October. For more information about the camps, please click here.

Von Willebrand Disease Educational Dinner for Women

Hemophilia of North Carolina will host a Von Willebrand Disease Educational Dinner for Women and SOAR Planning Session on June 24 at 6:30. The dinner is open to women and girls ages 12 and up and will take place at the Hemophilia of NC office in Morrisville. For more information and registration please click here.

Myasthenia Gravis Awareness Month

June is Myasthenia Gravis Awareness Month. The Myasthenia Gravis Foundation of America is posting daily tips throughout the month on their Facebook page. To learn more about Myasthenia Gravis, please click here.

5K Run and Fun Walk to Stop the Bleeding

The Hemophilia Foundation of Maryland will hold the 5K Run and Fun Walk to Stop the Bleeding on June 8. The event will take place at Quiet Water Park in Annapolis, MD and will begin at 8. For more information about the event please click here.

Kawasaki Disease Video

The Kawasaki Disease Foundation has created a Parents Guide to Kawasaki Disease video. The video includes information about symptoms, treatment, and care. To view the video, please click here.

Kawasaki Disease Foundation Challenge

The Kawasaki Disease Foundation Challenge is an online fundraiser to raise money to help find a test for Kawasaki Disease. The Gordon and Marilyn Macklin Foundation will match dollar for dollar up to $100,000 for every dollar that is raised. To learn more please click here.

WPCNHF Annual Meeting and Walk Kickoff

The Western Pennsylvania Chapter of the National Hemophilia Foundation will hold its Annual Meeting and Walk Kickoff July 28 at 2:30. The event will take place at North Park in Allison Park, PA. There will be barbecue and and plenty of activities for everyone. For more information or to RSVP to the event, please click here.

Facing Fabry Together

Check out the Facing Fabry Together Web site. It is a site dedicated to telling the stories of people and their families living with Fabry Disease. To visit the site please click here.

NHF Annual Meeting “United in Progress”

The National Hemophilia Foundation will hold its 65th annual meeting in Anaheim, CA. The theme for this year's meeting is "United in Progress"and will take place October 3-5. There is a 20% registration fee discount being offered for those who register before May 27. To learn more about the NHF Annual Meeting, please click here.

Home Runs for Hemophilia

The Delaware Valley Chapter of the National Hemophilia Foundation will hold Home Runs for Hemophilia May 24-27. The Home Run Derby and U10 Baseball Tournament will be held at the Pennridge Little League fields in Perkasie, PA. For more information about Home Runs for Hemophilia please click here.